This site is for people with DVT, seeking comfort and information from others who understand from personal experience.
 
HomeHome  FAQFAQ  RegisterRegister  Log in  
Share | 
 

 PTS (Post Thrombotic Syndrome)

View previous topic View next topic Go down 
Go to page : 1, 2  Next
AuthorMessage
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: PTS (Post Thrombotic Syndrome)   Tue Feb 17, 2009 7:32 pm

Here is one that touches home for me, about 3 weeks ago I have been diagnosed with PTS, so yes I will be doing some research on it...
For me, the valves and veins (deep veins) were damaged when the clot (the one I had in 2007) was traveling via my lungs and was jammed in my pelvis (btw, I probably am lucky that it stopped there, PE would have been the result had it NOT stop, I GUESS.)
study scratch
Back to top Go down
http://www.lifeafterdvt.forumotion.com
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Thu Feb 19, 2009 5:34 pm

The post thrombotic syndrome (PTS) is a chronic condition that develops in 20% to 50% of patients after deep venous thrombosis (DVT) 1,2; it is thus the most common complication of venous thromboembolism (VTE). PTS is not merely a cosmetic or “nuisance” problem. Rather, it is a costly and burdensome condition in terms of dollars spent and effect on quality of life and productivity. (more...)

-Compression therapy for treating stage I and II (Widmer) post-thrombotic syndrome

-More on PTS

Be advised, some pictures are of extreme PTS cases. (not pretty)
-S'more

-Effect of Post Thrombotic Syndrome (PTS) on Health-Related Quality of Life After Deep Venous Thrombosis


Last edited by dero on Sun Mar 13, 2011 1:32 pm; edited 13 times in total
Back to top Go down
http://www.lifeafterdvt.forumotion.com
Justin



Posts: 9
Join date: 2007-12-24
Age: 37
Location: Idaho

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Fri Feb 20, 2009 2:53 am

sorry to hear that big d. I hope treatment goes above average and you are back to normal soon Exclamation
Back to top Go down
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Thu May 14, 2009 9:37 pm

Hey Justin,
I had not seen this post, thanks for the concern.
Treatment for it right now is compression socks, for life, could be worst. At least I'm not on any anticoags, been just over 50 days off the junk, you think I'm bummed???
No, as soon as I have recoop from my bladder, you know what I'm doing. Yes, back on the bike... cheers
Back to top Go down
http://www.lifeafterdvt.forumotion.com
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Fri Jul 16, 2010 3:33 pm

The ongoing search for better answers regarding PTS.

http://circ.ahajournals.org/cgi/content/full/121/8/e217

http://en.wikipedia.org/wiki/Post-thrombotic_syndrome
Back to top Go down
http://www.lifeafterdvt.forumotion.com
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Tue Jul 20, 2010 10:41 pm

Lately, I have been doing lots of reading on PTS, trying to find something new, but to no avail.
The same Dr are doing the same research and come up with the same conclusion...

-That more research has to be done to obliterate DVT PE to eliminate PTS.
- That 50% of the people that had or have DVT will get PTS.
- The only thing they can recommend is COMPRESSION THERAPY
(compression socks or stockings).
-Worst case scenario is skin ulcer, along with pain, swelling and skin
discoloration.

One thing I am checking out is this unit called a "Venowave" that fastens to the back of your calf and creates an upward wave that pushes the blood towards the heart, so they claim.
www.venowave.com

But otherwise, no changes are taking place, same ol', same ol'.
Back to top Go down
http://www.lifeafterdvt.forumotion.com
DVT



Posts: 44
Join date: 2008-02-21

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Thu Jul 22, 2010 7:48 pm

have you tried the venowave, and if so, how's it working out for you..thanks for the link to it Very Happy . i too come up empty handed on news about pts, have been searching for sometime.
Back to top Go down
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Fri Jul 23, 2010 10:10 am

I have send the link to the Research team here in Ottawa, waiting for their respond, Tom (retired navy) brought it up to his research team in Connecticut and they seem to think that it's a massage unit more then anything. So... I think we are back to FUGLIES and elevation.
No
Back to top Go down
http://www.lifeafterdvt.forumotion.com
DVT



Posts: 44
Join date: 2008-02-21

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Fri Jul 23, 2010 11:27 pm

Crying or Very sad so, the search and hope continue.
Back to top Go down
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Sat Jul 24, 2010 1:32 am

study
Look at warfarin, since 1952, I'm not surprise that it's still the FUGLIES AND LEG ELEVATION that works?
Back to top Go down
http://www.lifeafterdvt.forumotion.com
Davidjs



Posts: 2
Join date: 2011-04-30

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Sat May 07, 2011 10:06 am

Hi,

I am about to be diagnosed with Post thrombotic syndrome. Whilst I am awaiting outome of scan I am sure it is as the symptoms match those of the description. I have been recommended compression stocking. Don't beleive they are making any difference. I have spent hours of research on the internet re advances in surgical treatment. Their is a clinic in Hawaii which seems the most advance in terms of technology and tecniques. It is rang by Dr Kristner. Does anyone know of any other advances being made?
Back to top Go down
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Mon May 09, 2011 10:38 am

No, is the answer to improved research on PTS. Compressions socks and leg elevation is still THE treatment.
Talking with one of Canada's leading researcher on PTS, "we need more $$$ and more research on PTS".
I have been diagnosed with it in 2009 and I am wearing my socks every day and I do see the difference, without them, my leg swells up and is painfully painful (yes, that describes it quite well).
If you get anymore info from that Dr., I would be glad to read it and share it with some of the Dr. up here in Canada and see what they think of it...


BTW, welcome to LADVT.
Back to top Go down
http://www.lifeafterdvt.forumotion.com
Davidjs



Posts: 2
Join date: 2011-04-30

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Sun May 15, 2011 2:49 pm

Thanks Dero,

I have my scan tomorrow. I will then speak with my consultant in the UK to find out what the latest developments are. It good to know someone like you understands. It has been frustrating as I have encountered a lot of apathy and lack of understanding what the condition of Post Thrombotic syndrome entails. I will keep trying and will never give up until I can find an operation that can permanently cure the condtion. I will ensure if I come up with something I will share it as I would like to help others it possible.
Back to top Go down
dero
Admin


Posts: 900
Join date: 2007-12-09
Age: 54
Location: Near Ottawa, Ontario Canada.

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Sun May 15, 2011 10:46 pm

Not too worry, no apathy nor sympathy from this place, heck we are all in the same boat...
PTS is my life, I feel it and hate it!!!
But, at least we are better then the ones that did not make it... (RIP)
THAT is the way to look at it.

That, is what I mean with the homepage...
Back to top Go down
http://www.lifeafterdvt.forumotion.com
DVT



Posts: 44
Join date: 2008-02-21

PostSubject: Re: PTS (Post Thrombotic Syndrome)   Sun Aug 21, 2011 1:29 am

http://www.ivanhoe.com/channels/p_printStory.cfm?storyid=26687
Back to top Go down
 

PTS (Post Thrombotic Syndrome)

View previous topic View next topic Back to top 
Page 1 of 2Go to page : 1, 2  Next

Permissions in this forum:You cannot reply to topics in this forum
Life DOES go on after DVT :: Post DVT :: Post Thrombotic Syndrome-