This site is for people with DVT, seeking comfort and information from others who understand from personal experience.
 
HomeHome  FAQFAQ  RegisterRegister  Log in  

Share | 
 

 Anti climax....

View previous topic View next topic Go down 
AuthorMessage
Dalpatria



Posts : 7
Join date : 2011-10-06

PostSubject: Anti climax....   Mon Jan 09, 2012 7:46 pm

I have been off work for about 6 months now, healing from my acute left ankle sprain;which then evolved into a left calf DVT. Whilst dealing with doctors of all variety and a battery of tests to determine if I have a blood clotting disorder here are some latest pieces of information.

1. I am, as of Jan 5, CLOT FREE! while this excites me, I am still left reeling from the following.
a) I believe I have Post Thrombotic Syndrome and that just plain sucks, but is manageable.
b) my doctor immediately informed me to get off of Pradax, that sounds great however, I am still not so certain I do NOT have a pre exisiting disorder, as I had three blood tests early on that may have indicated that possibility, Protein C deficiency, Protein S deficiency and Lupus Anticoagulant. Now, these results were likley skewed at the time as I was on thinners. So, instead of my GP suggesting I get re tested while I am now off thinners, I HAD TO DO THIS. Does that seem logical?? So, I have those tests coming up in a week.
c) I went to see a rheumatologist to deal with lower back ache I have had for years, thought it may have contributed to my nasty fall in July and the reason I ache all the time. Blood test revealed HLA-B27 for Ankylosing Spondylitis. Which, I agree may be possible, however I still have to have an MRI because in all likelihood, according to my rheumatologist, I likely "just have fibromyalgia"; so I need the MRI I guess to rule out A.S. So THAT has to happen before I get the green light to go back to work.
d) I also have to see a nerve doctor to attack the possibility of having Carpel Tunnel

So, that being said....does anyone else find it strange...that I HAD to mention to my doc that "heh, how be we make sure I don't have a clotting disorder before I get too excited"???? Anyone??? Seems so crazy to me that I would have to be that person to advocate for the obvious. Anyone else face this kind of craziness??

I am also thinking of the possibility of seeking another rheumatologist as I am CERTAIN I have some form of auto immune disorder and need to be reassessed as the rheumatologist I saw was incredibly dissmissive.....but I worry that I will be black balled by my insurance company and ordered back to work. I am not physically let alone emotionally ready....thought I would be elated that the clot is gone, not so much it seems....just seems a long process to get any answers. Haven't seen a blood specialist since Aug when he merely said "you have this clot cause you fell...lose weight and you'll be fine". Like REALLY?......

just venting here I suppose...and stuck with nothing but more questions than answers yet again.

Thanks!
Back to top Go down
M2LR



Posts : 2
Join date : 2012-01-13

PostSubject: Re: Anti climax....   Fri Jan 13, 2012 5:00 pm

My doctors arne't going to do any kind of genetic testing until and if I have another clot.

I do find it hard to have to advocate for myself, because it's MY health we are talking about and I really want to scream that to them. It's not their lives that might be affected, it's MINE.

I will try and insist when I am due to come off of the warfarin in May or June, but we will see.
Back to top Go down
 
Anti climax....
View previous topic View next topic Back to top 
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
Life DOES go on after DVT :: Why does this forum exist??? :: The Lounge...-
Jump to: